Roadmap to Resilience, Emotional, and Mental Health
The Roadmap Project is the ABP's national effort to support the resilience and emotional health of pediatric patients with chronic conditions, their families, and the medical teams who care for them. With funding from the ABP Foundation, the project aims to increase awareness for patients, families, and clinicians and provides tools and resources to help.
Why is this important?
(https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wmediaid=lszw78x2tq)Having a chronic condition can cause stress and difficulty coping for pediatric patients and their families. It also might make it harder to take good care of themselves, or it could make their symptoms worse. Watch our video (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wmediaid=lszw78x2tq) to learn more.
Current Roadmap Resources
Roadmap resources are free to download and use. Please provide feedback for improvements to the Roadmap Project team (mailto:ABP_Fdn_Project@cchmc.org).
Tools, resources, and examples that can help learning network teams increase the resilience and emotional health for children and families living with chronic conditions
We developed a set of four Example Conversations resources around common touchpoints with patients and families. Each one-page example highlights key components of the discussion, provides sample language, and offers considerations to promote positive interaction. Although these example conversations are not condition-specific, they are suitable for use with a variety of chronic conditions.
- Young child, newly diagnosed condition (https://www.abp.org/sites/abp/files/pdf/bmh-roadmap-example-young-child.pdf) (PDF)
- Young teen, newly diagnosed condition (https://www.abp.org/sites/abp/files/pdf/bmh-roadmap-example-young-teen.pdf) (PDF)
- Young teen, depression screening, established patient (https://www.abp.org/sites/abp/files/pdf/bmh-roadmap-example-depression-screening.pdf) (PDF)
- All ages, routine surveillance visit, established patient (https://www.abp.org/sites/abp/files/pdf/bmh-roadmap-example-routine-surveillance.pdf) (PDF)
Video Resources: Talking About Emotional Health
We developed four short vignettes of clinical encounters, designed to elicit discussion about integrating Roadmap strategies in practice, based on the Example Conversations resources.
- Video #1: Conversation with a Parent of a Child with a New Diagnosis (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wvideoid=ylyuo10y1l)
- Video #2: Introducing Depression Screening to an Established Teen Patient (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wvideoid=3bl9aqh8ur)
- Video #3: Conversation with an Established Teen Patient (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wvideoid=v3pzkb0ptt)
- Video #4: Conversation with a Parent of a Young Established Patient (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wvideoid=9vhgjauyaj)
To support using these videos, additional materials are available below.
- Self-Study Slides: Designed to be used independently by a single learner (https://www.abp.org/sites/abp/files/ppt/bmh-roadmap-videos-self-study-guide.pptx) (PPT)
- Facilitator Slides: Designed to be used by a facilitator working with individuals or groups (https://www.abp.org/sites/abp/files/ppt/bmh-roadmap-videos-facilitator-slides.pptx) (PPT)
- Facilitator Guide (overview): Designed to be used by facilitators working with individuals or groups (https://www.abp.org/sites/abp/files/pdf/bmh-roadmap-videos-facilitator-guide.pdf) (PDF)
How to Start Conversations about Emotional Health
At the Fall 2020 Virtual Learning Session for the Roadmap Project, pediatric psychologist Erica Sood, PhD, gave a presentation describing the “Normalize, Ask, Pause” technique for starting discussions about emotional health with patients with a chronic condition or their families.
- Video recording of the presentation (https://fast.wistia.net/embed/channel/til9iwsorj?wchannelid=til9iwsorj&wmediaid=leoeuy8wov)
The Impact of Being Black on Living with a Chronic Condition
Carole Lannon, MD, MPH from ABP Roadmap hosts a panel discussion with patients and parents on the intersection of being Black with chronic conditions and how it affects mental and emotional health. We encourage you to listen as Robin Kinebrew, MA, Christian Lawson, Tawanna Nishibayashi, and Latoshia Rouse share their care experiences.
How can I use this resource? This resource was developed to allow patient and parent partners to shine a light on their experiences within the care system. We encourage all to use this opportunity to listen and learn how you may be able to as either a provider, parent, or patient understand how disparities play a part on a parent or patient’s emotional health.
Maintenance of Certification (MOC) Part 2 Activity
The Self-Assessment MOC activity "Emotional Health and Resilience for Patients and Families with Chronic Pediatric Conditions," based on the Roadmap Project, confers 10 MOC Part 2 points and six CME credits when successfully completed. Log in to your ABP Portfolio (https://landingpage.abp.org/) to begin.
This manuscript (https://pediatrics.aappublications.org/content/145/2/e20191324), co-authored by physicians and parents, highlights the need for emotional support for children with chronic conditions and their families and the learnings to date from the Roadmap Project.
Roadmap Administration and Questions
The Roadmap Project is administered by the Learning Networks Program of the Anderson Center for Health Systems Excellence (http://www.cincinnatichildrens.org/service/j/anderson-center/learning-networks).
To learn more about the Project, please email the Roadmap Project Team (mailto:ABP_Fdn_Project@cchmc.org?subject=Roadmap%20Project&body=Hello%2C%0A%0AI%20read%20about%20the%20Roadmap%20Project%20on%20www.abp.org%20and%20would%20like%20more%20information.).