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Roadmap to Resilience, Emotional, and Mental Health

Having a chronic condition can cause stress and trouble coping for pediatric patients and their families. It may also make it harder to take good care of themselves or make their symptoms worse.

The Roadmap ProjectThe American Board of Pediatrics (ABP) is working with patients, parents, and the Learning Networks Program of the Anderson Center for Health Systems Excellence to increase awareness for patients, families, and clinicians and provide ways to help. The Roadmap Project is a national effort that aims to support the resilience, emotional, and mental health of pediatric patients with chronic conditions and their families.

Working with a  number of learning networks, patient/family organizations, and other stakeholder groups, Roadmap aims to:

  • Increase awareness about the need to provide emotional and mental health support for children with chronic conditions and their families
  • Build will and a sense of urgency to address this issue
  • Educate families, pediatricians, subspecialists, trainees, networks, and organizations about existing tools and strategies

You do not have to be a mental health professional to make a difference. We created a Change Package with tools, resources, and examples that learning network teams can use to improve care. Download the Change Package and find changes you might want to test to increase resilience and emotional health for patients living with chronic pediatric conditions and their families.

 

 

Some may find talking about emotional and mental health challenging. To support clinician comfort and confidence in initiating these important conversations, we developed a set of four example conversations around common touchpoints with patients and families — diagnosis (younger child and teenager), routine surveillance visits, and introduction of universal teen depression screening as recommended by the American Academy of Pediatrics. Each was developed with input from parents, child psychologists, and pediatric specialists, and highlights key components of the discussion, provides sample language, and offers considerations to promote positive interaction. Although these example conversations are not condition-specific, they are suitable for use with a variety of chronic conditions.

To learn more about why families and clinicians are partnering to address emotional resilience through the Roadmap Project, watch our video, “How Are You Doing?”

To learn more about the Roadmap Project, please email the Roadmap Project Team