Roadmap to Resilience, Emotional, and Mental Health

The Roadmap ProjectThe Roadmap Project is the ABP's national effort to support the resilience and emotional health of pediatric patients with chronic conditions, their families, and the medical teams who care for them. With funding from the ABP Foundation, the project aims to increase awareness for patients, families, and clinicians and provides tools and resources to help.

 

Why is this important?

Having a chronic condition can cause stress and difficulty coping for pediatric patients and their families. It also might make it harder to take good care of themselves, or it could make their symptoms worse. Watch our video to learn more.

Current Roadmap Resources

Roadmap resources are free to download and use. Please provide feedback for improvements to the Roadmap Project team.

Change Package

Tools, resources, and examples that can help learning network teams increase the resilience and emotional health for children and families living with chronic conditions

 

Addressing Emotional Health: A Self-Assessment

This self-assessment activity is aimed at helping providers better understand and assess the emotional health of children and adolescents with chronic conditions and their families. The self-assessment questions will help you evaluate your understanding of emotional health and present example scenarios to help you put the learning into practice. We encourage you to review the referenced materials linked within the assessment. Once complete, you can utilize the self-assessment key linked above to compare your answers.

Example Conversations

We developed a set of four Example Conversations resources around common touchpoints with patients and families. Each one-page example highlights key components of the discussion, provides sample language, and offers considerations to promote positive interaction. Although these example conversations are not condition-specific, they are suitable for use with a variety of chronic conditions.

Video Resources: Talking About Emotional Health

We developed four short vignettes of clinical encounters, designed to elicit discussion about integrating Roadmap strategies in practice, based on the Example Conversations resources.

To support using these videos, additional materials are available below.

How to Start Conversations about Emotional Health 

At the Fall 2020 Virtual Learning Session for the Roadmap Project, pediatric psychologist Erica Sood, PhD, gave a presentation describing the “Normalize, Ask, Pause” technique for starting discussions about emotional health with patients with a chronic condition or their families.

The Impact of Being Black on Living with a Chronic Condition

Carole Lannon, MD, MPH from ABP Roadmap hosts a panel discussion with patients and parents on the intersection of being Black with chronic conditions and how it affects mental and emotional health. We encourage you to listen as Robin Kinebrew, MA, Christian Lawson, Tawanna Nishibayashi, and Latoshia Rouse share their care experiences.

 
 

How can I use this resource? This resource was developed to allow patient and parent partners to shine a light on their experiences within the care system. We encourage all to use this opportunity to listen and learn how you may be able to as either a provider, parent, or patient understand how disparities play a part on a parent or patient’s emotional health.

Maintenance of Certification (MOC) Part 2 Activity

The Self-Assessment MOC activity "Emotional Health and Resilience for Patients and Families with Chronic Pediatric Conditions," based on the Roadmap Project, confers 10 MOC Part 2 points and six CME credits when successfully completed. Log in to your ABP Portfolio to begin.

Pediatrics Manuscript

This manuscript, co-authored by physicians and parents, highlights the need for emotional support for children with chronic conditions and their families and the learnings to date from the Roadmap Project.

 

Roadmap Administration and Questions

The Roadmap Project is administered by the Learning Networks Program of the Anderson Center for Health Systems Excellence.

To learn more about the Project, please email the Roadmap Project Team