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Roadmap to Resilience, Emotional, and Mental Health

 

Having a chronic condition can cause stress and difficulty coping for pediatric patients and their families. It also might make it harder to take good care of themselves, or it could make their symptoms worse.

With funding from the ABP Foundation, the Roadmap Project* is committed to supporting pediatric patients living with chronic conditions, their families, and the medical teams who care for them through:

  • Partnering with multiple stakeholders and organizations, including parents, patients, subspecialists, trainees, and children's hospitals
  • Increasing awareness about the need and urgency to provide support for emotional health and resilience for children with chronic conditions and their families
  • Creating tools for clinicians to improve care and initiate important conversations
  • Educating families, pediatricians, and organizations about existing resources

Current Roadmap Resources

Roadmap resources are free to download and use. Please provide feedback for improvements to the Roadmap Project team.

Change Package

Tools, resources, and examples that can help learning network teams increase the resilience and emotional health for children and families living with chronic conditions

 

Example Conversations

We developed a set of four Example Conversations resources around common touchpoints with patients and families. Each one-page example highlights key components of the discussion, provides sample language, and offers considerations to promote positive interaction. Although these example conversations are not condition-specific, they are suitable for use with a variety of chronic conditions.

Video Resources: Talking About Emotional Health

Maintenance of Certification (MOC) Part 2 Activity

The Self-Assessment MOC activity "Emotional Health and Resilience for Patients and Families with Chronic Pediatric Conditions," based on the Roadmap Project, confers 10 MOC Part 2 points and six CME credits when successfully completed. Log in to your ABP Portfolio to begin.

Pediatrics Manuscript

This manuscript, co-authored by physicians and parents, highlights the need for emotional support for children with chronic conditions and their families and the learnings to date from the Roadmap Project.

 

Future Efforts

A Pilot Learning Collaborative of several U.S. children’s hospitals, launched in January 2020, is developing and testing additional Roadmap resources.

We will post these new items on this page as they become available.

To learn more about the Roadmap Project, please email the Roadmap Project Team


The Roadmap ProjectThe Roadmap Project is the ABP's national effort to support the resilience and emotional health of pediatric patients with chronic conditions and their families. Working with the Learning Networks Program of the Anderson Center for Health Systems Excellence, the ABP aims to increase awareness for patients, families, and clinicians and provide ways to help.